Poland Syndrome | Please Ask Me!
Being the parent of a child who has Poland Syndrome can often lead to people staring. Brody’s Mum wrote to us recently with her thoughts on this
Born with Poland’s Syndrome
A short while ago we told you about a survey we conducted on “The Age of Diagnosis for Poland Syndrome” We still get people adding comments to this and today we share a rare event of a baby being diagnosed almost at birth.
Poland Syndrome | No Big Deal
We like to share stories of inspiring people who have Poland Syndrome. Today we share an article featuring James Gallagher a golfer.
Poland Syndrome and Breast Prostheses
Poland Syndrome for young teenage girls and women can be particularly distressing as the Poland Syndrome affected side may lead to an undeveloped breast. We met Bravelle on Twitter and think they could really be helpful if you’re considering an alternative to surgery to help gain some body confidence.
You are not alone
Poland Syndrome is so rare individuals and families can feel isolated and very alone with no one to talk to or share their troubles and joys. This is why we set up PIP-UK and we were delighted to receive some positive feedback on our Facebook Page today !
Talent Does Not Count on Fingers
Today we tell you about Isabelli a beautiful little girl who was born with limb differences and is a budding musician
Poland Syndrome | Dancer
Poland syndrome shouldn’t hold you back from anything especially physical activity. Today we share a story of a young dancer who has Poland Syndrome.
Poland Syndrome – Author
During our time with PIP-UK we have made a few friends. One of these is Cynthia Sharp author of “P.S. You are Loved” a book full of stories about living with Poland Syndrome. Today we share a short note that Cynthia wrote sometime ago but is still relevant to us all.
How will my child….?
When a child is born with limb differences like poland syndrome parents can often feel like they have a zillion questions and no one to ask. Well take a look at today’s post and we’ll help you answer some with a little help from Jack 🙂
Poland Syndrome – Chest Surgery
Some men can feel self-conscious about their chest area when they have Poland Syndrome. The chest muscle does not form on one side and can make men be wary of displaying their chest in public. Today we share Paul’s story and his decision to have cosmetic surgery to improve his chest area before walking down the aisle with his bride.