Poland Syndrome | Dancer

Poland Syndrome | Dancer

Poland syndrome shouldn’t hold you back from anything especially physical activity. Today we share a story of a young dancer who has Poland Syndrome.

Poland Syndrome – Author

Poland Syndrome – Author

During our time with PIP-UK we have made a few friends. One of these is Cynthia Sharp author of “P.S. You are Loved” a book full of stories about living with Poland Syndrome. Today we share a short note that Cynthia wrote sometime ago but is still relevant to us all.

How will my child….?

When a child is born with limb differences like poland syndrome parents can often feel like they have a zillion questions and no one to ask. Well take a look at today’s post and we’ll help you answer some with a little help from Jack 🙂

Poland Syndrome – Chest Surgery

Poland Syndrome – Chest Surgery

Some men can feel self-conscious about their chest area when they have Poland Syndrome. The chest muscle does not form on one side and can make men be wary of displaying their chest in public. Today we share Paul’s story and his decision to have cosmetic surgery to improve his chest area before walking down the aisle with his bride.

Poland Syndrome – Author

Path to Self-Esteem

At PIP-UK we bring you another shared experience about growing up with Poland Syndrome from childhood to adulthood. Poland syndrome for young girls can be difficult. Frequently the challenges to self-esteem are carried through to adulthood. Suanne Reiker has been through this and we share her story in search of her self-esteem.

Encouragement goes a long way!

Encouragement goes a long way!

Sharing experiences about Poland Syndrome helps us all to understand what might be coming for a younger generation and also what we can do to support our friends and family. We featured a new blog we found a few weeks ago about one persons account of living with Poland Syndrome. Thanks to our readers she has posted again….

Poland Syndrome: New Blog

Poland Syndrome: New Blog

At PIP-UK we want to spread the word about Poland Syndrome. Today we introduce you to a new blog and ask that you take 5 minutes out of your day to read about the experiences of the author. The blog is about “A woman’s story of growing up with Poland Syndrome in a world obsessed with perfection”. Some readers may find the content a little hard on the heart but we urge you to stick with it. Sharing experiences is important for us all to learn.

Poland Syndrome and Baby Number 2

Poland Syndrome and Baby Number 2

Happily we are expecting our second child in the spring and I wanted to share my experiences so far of how our families’ journey with Poland Syndrome has continued during this pregnancy. When we had the happy news we were expecting, I honestly did not give Poland...