Poland Syndrome 1940’s baby
Throughout life I have tried not to let the disability hold me back and have had a career in scientific research. I have driven a manual car for the last 50 years and I have always played sport. I have played football, rugby, golf and squash at a not very high level at various times in my life. I still fly fish and go for a jog several times a week.
Poland Syndrome – Getting Older
This information was kindly provided by Shirley in our Poland Syndrome Facebook Group. Shirley gave us permission to publish her account to our blog post. Our hope is this will be of use to others who are experiencing life as an older person living with Poland...Poland Syndrome | Father’s Story
Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience
Poland Syndrome | Being a Trustee
Find out what it is like to be a trustee and help other people. Supporting families and individuals living with poland syndrome is the life blood of PIP-UK
Poland Syndrome | Starting School
Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.
Poland Syndrome | Getting the right treatment
Sometimes you have to just keep going back to the doctor to get the right treatment. Sam shares her experience about dealing with the medical professionals to get some phsyio treatment for her son,
Poland Syndrome | Using Games Consoles
Sharing experience about my son and using games consoles like playstation and Wii with Poland Syndrome.
Poland Syndrome | Swimming Lessons
Poland Syndrome can be a difficult diagnosis for parents but there will come a time when you don’t feel the need to explain to everyone.
Poland Syndrome | Sharing Melissa’s Story
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.