Our 1st Medical Symposium
Plain English Summary of PIP-UK Medical Symposium Wednesday 7th June 2023 Plan Early Treatment for Children with Poland Syndrome Alan Macnichol This first in a planned series of medical symposia organised by PIP-UK was held on Zoom on 7th June 2023. A panel of...PS Awareness Day Resources
Poland Syndrome Awareness Day Resources This Poland Syndrome Awareness Day we want to help you: Get together & Raise awareness Celebrate & Fundraise for Poland Syndrome across the globe. We have created some resources for you to print and use at home...Surgery journey began at 16 yrs and “thought I was the only one” until 21 yrs
Sharing your story is so powerful for you and others. We know how tough it can be share your story and we really apprecaite it when peope do. We were happy this lady go in touch to share her story and she finally knows she’s not alone! While I was in middle...Volunteer Opportunities Summer 22
We are on our way to creating a thriving Poland Syndrome Community that enables the people affected by Poland Syndrome to live their best lives. PIP-UK brings together the Poland Syndrome Community by creating a culture that celebrates, connects and informs. But we...Living Well with Poland Syndrome Blog
How positive journaling can improve your outlook when living with Poland Syndrome. Tiegan MacAulay Poland syndrome is a condition whereby a person’s muscles on one side of the body are absent or undeveloped, causing anomalies in the chest, as well as the...Poland Syndrome Awareness Fun Day 2022
Poland Syndrome Awareness Day Fun Day Meet Up PIP-UK celebrates Poland Syndrome Awareness Day with Fun Day Meet-up!#PolandSyndromeAwarenessDay Poland syndrome is a condition in which a person’s muscles on one side of the body are absent or undeveloped, causing...Poland Syndrome Essay by Charlotte Mercer (medical student)
Rare Disease Patient Groups: Taking Research Into Their Own Hands Rare Diseases and Research Participation Introduction Living with a rare disease can be an incredibly isolating experience, with some patients suffering in silence for many years. This problem is...Mental Health Resources for the Poland Syndrome Community
Links and information to organisations who can help with mental health for our Poland Syndrome Community. Information for children and adults.
Finding Community in Rare Disease
Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.