Poland Syndrome Awareness Fun Day 2022
Poland Syndrome Awareness Day Fun Day Meet Up PIP-UK celebrates Poland Syndrome Awareness Day with Fun Day Meet-up!#PolandSyndromeAwarenessDay Poland syndrome is a condition in which a person’s muscles on one side of the body are absent or undeveloped, causing...Poland Syndrome Essay by Charlotte Mercer (medical student)
Rare Disease Patient Groups: Taking Research Into Their Own Hands Rare Diseases and Research Participation Introduction Living with a rare disease can be an incredibly isolating experience, with some patients suffering in silence for many years. This problem is...Mental Health Resources for the Poland Syndrome Community
Links and information to organisations who can help with mental health for our Poland Syndrome Community. Information for children and adults.
Finding Community in Rare Disease
Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.
Big Sister- To a Very Special Little Boy.
Nancy became a big sister to a new born baby brother who was born with Poland Syndrome and shares her experience of watching her baby brother grow up
Poland Syndrome | Father’s Story
Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience
Poland Syndrome | Starting School
Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.
Poland Syndrome | Getting the right treatment
Sometimes you have to just keep going back to the doctor to get the right treatment. Sam shares her experience about dealing with the medical professionals to get some phsyio treatment for her son,
Poland Syndrome | Sharing Melissa’s Story
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.