Links and information to organisations who can help with mental health for our Poland Syndrome Community. Information for children and adults.
Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.
Nancy became a big sister to a new born baby brother who was born with Poland Syndrome and shares her experience of watching her baby brother grow up
Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience
Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.
Sometimes you have to just keep going back to the doctor to get the right treatment. Sam shares her experience about dealing with the medical professionals to get some phsyio treatment for her son,
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.
Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier
We work in lots of different ways to help those dealing with Poland Syndrome. Liz our trustee shares an account from a mother we helped recently dealing with concerns about her child growing up with Poland Syndrome
Poland Syndrome is so rare that dealing with medical professionals can be frustrating and difficult. Finding your own voice for your child can be stressful but so important.