Mental Health Resources for the Poland Syndrome Community
Links and information to organisations who can help with mental health for our Poland Syndrome Community. Information for children and adults.
Finding Community in Rare Disease
Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.
Big Sister- To a Very Special Little Boy.
Nancy became a big sister to a new born baby brother who was born with Poland Syndrome and shares her experience of watching her baby brother grow up
Poland Syndrome | Meet Tasha and Harry
Mum Tasha, tells about her experience on getting a diagnosis for Poland Sydnrome for her son and how PIP-UK helped on that journey
Poland Syndrome | Father’s Story
Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience
Poland Syndrome | We can help
A short note about some of the work we do and how we can help you on your Poland Syndrome journey
Poland Syndrome | Getting the right treatment
Sometimes you have to just keep going back to the doctor to get the right treatment. Sam shares her experience about dealing with the medical professionals to get some phsyio treatment for her son,
Poland Syndrome | PIP payment (UK only)
Did you know it might be possible to get a Personal Independence Payment if you have Poland Syndrome? Find out more by reading this post
Poland Syndrome | Sharing Melissa’s Story
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.
Poland Syndrome | Preparing Your Child for Surgery
Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier