Mental Health Resources for the Poland Syndrome Community
Links and information to organisations who can help with mental health for our Poland Syndrome Community. Information for children and adults.
Finding Community in Rare Disease
Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.
Big Sister- To a Very Special Little Boy.
Nancy became a big sister to a new born baby brother who was born with Poland Syndrome and shares her experience of watching her baby brother grow up
Poland Syndrome | Father’s Story
Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience
Poland Syndrome | Starting School
Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.
Poland Syndrome | Getting the right treatment
Sometimes you have to just keep going back to the doctor to get the right treatment. Sam shares her experience about dealing with the medical professionals to get some phsyio treatment for her son,
Poland Syndrome | Sharing Melissa’s Story
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.
Poland Syndrome | Preparing Your Child for Surgery
Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier
Poland Syndrome | Supporting Parents
We work in lots of different ways to help those dealing with Poland Syndrome. Liz our trustee shares an account from a mother we helped recently dealing with concerns about her child growing up with Poland Syndrome
Poland Syndrome | Be The Voice of Your Child
Poland Syndrome is so rare that dealing with medical professionals can be frustrating and difficult. Finding your own voice for your child can be stressful but so important.