Finding Community in Rare Disease
Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.
Poland Syndrome | Missing Muscle
The Mystery of the Missing Muscle I am a 67 year old man with Poland Syndrome – though up until a few years ago I had no idea that is what it is called. It was only after hearing the Sussex cricketer Lewis Hatchett speak about the condition on Test Match Special that...Poland Syndrome | Winter Gloves
Poland syndrome winter gloves can be hard to come by. When you have one hand smaller than the other or missing fingers. We’ve found someone who can help
Poland Syndrome | Using Games Consoles
Sharing experience about my son and using games consoles like playstation and Wii with Poland Syndrome.
Poland Syndrome | Swimming Lessons
Poland Syndrome can be a difficult diagnosis for parents but there will come a time when you don’t feel the need to explain to everyone.
Poland Syndrome | Body Building – Faraz
We connected with Faraz earlier this year who has started a web page about body building and poland syndrome. This is Faraz’s introduction to the site that he has created.
Poland Syndrome | Sharing Melissa’s Story
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.
Poland Syndrome | Bullying, School and Inclusion
Children start noticing differences at a young age. I share my own experience of my son’s first encounter with bullying at school, how it made me feel and what we did.
Poland Syndrome | Preparing Your Child for Surgery
Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier
Poland Syndrome | Ben Popp
Guest post from Ben Popp who shares his experience of life with Poland Syndrome and is aspiring to become the first model with Poland Syndrome