A synopsis of our medical symposium for medical professionals

Summary of PIP-UK Medical Symposium Wednesday 7th June 2023 Plan Early Treatment for Children with Poland Syndrome Alan Macnichol This first in a planned series of medical symposia organised by PIP-UK was held on Zoom on 7th June 2023. A panel of clinicians from the...

Our 1st Medical Symposium

Plain English Summary of PIP-UK Medical Symposium Wednesday 7th June 2023 Plan Early Treatment for Children with Poland Syndrome   Alan Macnichol This first in a planned series of medical symposia organised by PIP-UK was held on Zoom on 7th June 2023. A panel of...

PS Awareness Day Resources

Poland Syndrome Awareness Day Resources  This Poland Syndrome Awareness Day we want to help you: Get together & Raise awareness  Celebrate & Fundraise for Poland Syndrome across the globe.   We have created some resources for you to print and use at home...

Volunteer Opportunities Summer 22

We are on our way to creating a thriving Poland Syndrome Community that enables the people affected by Poland Syndrome to live their best lives. PIP-UK brings together the Poland Syndrome Community by creating a culture that celebrates, connects and informs. But we...

Living Well with Poland Syndrome Blog

How positive journaling can improve your outlook when living with Poland Syndrome. Tiegan MacAulay Poland syndrome is a condition whereby a person’s muscles on one side of the body are absent or undeveloped, causing anomalies in the chest, as well as the...

Poland Syndrome Awareness Fun Day 2022

Poland Syndrome Awareness Day Fun Day Meet Up PIP-UK celebrates Poland Syndrome Awareness Day with Fun Day Meet-up!#PolandSyndromeAwarenessDay Poland syndrome is a condition in which a person’s muscles on one side of the body are absent or undeveloped, causing...

Poland Syndrome Essay by Charlotte Mercer (medical student)

Rare Disease Patient Groups: Taking Research Into Their Own Hands Rare Diseases and Research Participation Introduction Living with a rare disease can be an incredibly isolating experience, with some patients suffering in silence for many years. This problem is...

Living With Poland Syndrome – Stuart (interview)

The PIP-UK team interview Stuart about his Poland Syndrome journey and how he feels about the Poland Syndrome Community Register. Video Transcript:  Sam  0:03   Okay, welcome, everyone. We’re back in our series of talking about our global Poland Syndrome...

Poland Syndrome – Female Experience

Poland Syndrome – Female Experience.  Today we share a story sent to us by Elizabeth Page:  When I was born 31 years ago, my ribs were concaved. My mom said it was kind of as if I was folded in half. They rushed me off and after a while let my dad know what was...