Links and information to organisations who can help with mental health for our Poland Syndrome Community. Information for children and adults.
Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.
Poland syndrome winter gloves can be hard to come by. When you have one hand smaller than the other or missing fingers. We’ve found someone who can help
Sharing experience about my son and using games consoles like playstation and Wii with Poland Syndrome.
Poland Syndrome can be a difficult diagnosis for parents but there will come a time when you don’t feel the need to explain to everyone.
We connected with Faraz earlier this year who has started a web page about body building and poland syndrome. This is Faraz’s introduction to the site that he has created.
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.
Children start noticing differences at a young age. I share my own experience of my son’s first encounter with bullying at school, how it made me feel and what we did.
Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier