Understanding and Supporting Poland Syndrome Community Support Discover essential insights and resources to navigate Poland Syndrome effectively. Our helpsheet is designed to provide clarity and support for individuals and families. Download Here Helpsheet Features...
Uniting Voices for Poland Syndrome Awareness What about PS? What happens when you meet someone with your rare condition for the first time at age 24? Karen and Gift share their emotional stories of finding belonging through @PIPUK. Their message: “You are seen,...
Summary of PIP-UK Medical Symposium Wednesday 7th June 2023 Plan Early Treatment for Children with Poland Syndrome Alan Macnichol This first in a planned series of medical symposia organised by PIP-UK was held on Zoom on 7th June 2023. A panel of clinicians from the...
Plain English Summary of PIP-UK Medical Symposium Wednesday 7th June 2023 Plan Early Treatment for Children with Poland Syndrome Alan Macnichol This first in a planned series of medical symposia organised by PIP-UK was held on Zoom on 7th June 2023. A panel of...
Poland Syndrome Awareness Day Resources This Poland Syndrome Awareness Day we want to help you: Get together & Raise awareness Celebrate & Fundraise for Poland Syndrome across the globe. We have created some resources for you to print and use at home...
Sharing your story is so powerful for you and others. We know how tough it can be share your story and we really apprecaite it when peope do. We were happy this lady go in touch to share her story and she finally knows she’s not alone! While I was in middle...
What’s Involved? Core Contributions As a PIP-UK Regional Volunteer Coordinator, your leadership and engagement directly influence our community initiatives and member experiences. The core contributions of the role include: Community Building First Point of...
How positive journaling can improve your outlook when living with Poland Syndrome. Tiegan MacAulay Poland syndrome is a condition whereby a person’s muscles on one side of the body are absent or undeveloped, causing anomalies in the chest, as well as the...
Poland Syndrome Awareness Day Fun Day Meet Up PIP-UK celebrates Poland Syndrome Awareness Day with Fun Day Meet-up!#PolandSyndromeAwarenessDay Poland syndrome is a condition in which a person’s muscles on one side of the body are absent or undeveloped, causing...
Rare Disease Patient Groups: Taking Research Into Their Own Hands Rare Diseases and Research Participation Introduction Living with a rare disease can be an incredibly isolating experience, with some patients suffering in silence for many years. This problem is...
