PIP-UK was set up to provide a first line of support to individuals with Poland Syndrome or families with a young child growing up with Poland Syndrome. Today we were delighted to receive a comment on our Facebook page to another grateful family.
Poland Syndrome is known to be more prevalent in males than females it’s about 3:1 ratio. And strangely enough it seems to affect one side of the body more than the other, usually the right side (75% of the time). Poland Syndrome is rare that it is often not diagnosed in infancy. We recently heard of a lady who found out when her sister went to see a geneticist as the sister was considering having a baby. The sister had described the lady’s visible features and the geneticist wrote “Poland Syndrome” on the back of a business card. The lady was in her late 20’s!