What is Poland Syndrome?
Poland Syndrome is a rare birth difference. This syndrome occurs during foetal development and the baby is born with physical differences. The main physical sign of Poland Syndrome is an under-developed or missing chest muscle. This is not something that a parent or indeed doctor may be able to see without some further investigations. Sometimes this is not seen at birth. A child may be several years old before the missing muscle(s) become apparent parents often describe a “sunken-chest”. However, another notable sign you might see are some of the child’s fingers are webbed on one hand or there are digits missing. As Poland Syndrome is a syndrome there are various physical differences a person may be born with.
What causes Poland Syndrome?
Unfortunately the answer to that is currently unknown. There are a number of theories; probably the most accepted is that during development in the womb blood flow to the arm is diminished in some way which leads to under-development.
What treatments are used for Poland Syndrome?
Poland Syndrome difference can be surgically corrected if the parents and/or child wishes to have the procedures. We highly recommend you discuss the options with your medical professional and do some research. At PIP-UK we can offer you the benefit of our experience so please contact us if you want to talk things through.
How can PIP-UK help me?
First off, we suggest you take a look at our Family Support section. Here you will find shared experiences from a variety of people who have Poland Syndrome or who have a loved who has Poland Syndrome. Next either give us a ring or send an e-mail to us. If we don’t have the answers you need we will find someone who does.
Note: PIP-UK is only sharing this information from their own experiences a medical professional should always be consulted about Poland Syndrome or any other rare conditions.