Throughout life I have tried not to let the disability hold me back and have had a career in scientific research. I have driven a manual car for the last 50 years and I have always played sport. I have played football, rugby, golf and squash at a not very high level at various times in my life. I still fly fish and go for a jog several times a week.
Nancy became a big sister to a new born baby brother who was born with Poland Syndrome and shares her experience of watching her baby brother grow up
Mum Tasha, tells about her experience on getting a diagnosis for Poland Sydnrome for her son and how PIP-UK helped on that journey
Is there a correlation between Poland Syndrome and breathing difficulties if someone has an upper respiratory infection? What is your experience?
People with Poland Syndrome will at varying points in their life address the issue of body image. It’s important we start to find the right tools to help
Poland Syndrome is something a person is born with but it is not always detectable until a child grows and develops and differences become apparent