Poland Syndrome | 10 Basic Facts
Poland Syndrome in 10 Basic Fact Sheets
Poland Syndrome | Breathing Difficulties
Is there a correlation between Poland Syndrome and breathing difficulties if someone has an upper respiratory infection? What is your experience?
Poland Syndrome | The Discovery
Poland Syndrome is something a person is born with but it is not always detectable until a child grows and develops and differences become apparent
Poland Syndrome | Hand differences
This video is a collection of stories from parents who have kids born with a hand difference. We also hear from the children who share their experience. This is a great video for everyone to watch.
Poland Syndrome not Recognised
We’ve reported a few times about Poland Syndrome not be diagnosed correctly. But were saddened when we heard this story from a young man.
Survey results – Age of Diagnosis
We conducted a survey on the age at which people are diagnosed with Poland Syndrome. The results might just surprise you.
Diagnosed with Poland Syndrome at 15
Poland syndrome is frequently not diagnosed at a young age and this can lead to providing the wrong information to youngsters especially teenagers
Language of Poland Syndrome
Find out how to translate “Poland Syndrome” into the native language of the country you’re travelling too. Might come in handy if you or a family member needs medical attention
“Knowledge is Good”
Another family with Poland Syndrome contacted us! It’s been a great week for PIP-UK We have added to our stories and experience. Today’s personal story shows us there may be a genetic link as more than one generation in this family has Poland Syndrome.
Syndrome vs Disease?
Why is Poland Syndrome referred to as a syndrome and not a disease? Today we tell you what we have learned about that.