Meet Mum Rio, and gorgeous son Harvey. Rio found PIP-UK after discovering her son had Poland Syndrome. We’ve been helping her out along the way and today she shares her’s and Harvey’s story with us.
47 year old who has only just found out she has Poland Syndrome shares her story so others can learn.
We’ve reported a few times about Poland Syndrome not be diagnosed correctly. But were saddened when we heard this story from a young man.
Being the parent of a child who has Poland Syndrome can often lead to people staring. Brody’s Mum wrote to us recently with her thoughts on this
A short while ago we told you about a survey we conducted on “The Age of Diagnosis for Poland Syndrome” We still get people adding comments to this and today we share a rare event of a baby being diagnosed almost at birth.
We like to share stories of inspiring people who have Poland Syndrome. Today we share an article featuring James Gallagher a golfer.
Poland Syndrome for young teenage girls and women can be particularly distressing as the Poland Syndrome affected side may lead to an undeveloped breast. We met Bravelle on Twitter and think they could really be helpful if you’re considering an alternative to surgery to help gain some body confidence.
Poland Syndrome is so rare individuals and families can feel isolated and very alone with no one to talk to or share their troubles and joys. This is why we set up PIP-UK and we were delighted to receive some positive feedback on our Facebook Page today !
Today we tell you about Isabelli a beautiful little girl who was born with limb differences and is a budding musician
Poland syndrome shouldn’t hold you back from anything especially physical activity. Today we share a story of a young dancer who has Poland Syndrome.