Sharing experiences about Poland Syndrome helps us all to understand what might be coming for a younger generation and also what we can do to support our friends and family. We featured a new blog we found a few weeks ago about one persons account of living with Poland Syndrome. Thanks to our readers she has posted again….
Why do we exist? Information on Poland Syndrome is scarce. We hear from people from all over the world who want to find out more. We’re trying to create a hub a place where people can come and find out more. To be reassured, to learn and to understand they are not alone.