PIP-UK went to see Richard Stott’s show at the Edingburgh Fringe Festival. Richard is an actor who has Poland Syndrome. His show “Wretched” is all about his personal experience of living with Poland Syndrome.
The money we raise at PIP-UK is used to raise awareness of Poland Syndrome, to pay for costs of a website but also to help those in need. This is a short account of a family in need who we supported.
PIP-UK had membership to Rare Disease UK confirmed today! We are genuinely excited about this new partnership. We have been exploring their site and now we’re buzzing with all sorts of ideas … watch this space!
PIP-UK members attend our first Poland Syndrome conference in Italy … read on to find out how we got on and what we learned….
PIP Press – Our first press publication read all about it