Brody has “Poland’s Sequence” (alternative name for Poland Syndrome) and after some recent therapy has started to stand up more confidently.
A short while ago we told you about a survey we conducted on “The Age of Diagnosis for Poland Syndrome” We still get people adding comments to this and today we share a rare event of a baby being diagnosed almost at birth.
We like to share stories of inspiring people who have Poland Syndrome. Today we share an article featuring James Gallagher a golfer.
We recently met Brody through Facebook. Brody was born with “Poland Sequence” He’s missing ribs, pectoralis major muscle, and severe deformity of the right hand. All affecting the right side.
Poland Syndrome for young teenage girls and women can be particularly distressing as the Poland Syndrome affected side may lead to an undeveloped breast. We met Bravelle on Twitter and think they could really be helpful if you’re considering an alternative to surgery to help gain some body confidence.
Poland syndrome is frequently not diagnosed at a young age and this can lead to providing the wrong information to youngsters especially teenagers
Parents often contact us with questions about what their child will be able to do if they have Poland Syndrome. Our answer is always simply “anything”
Poland Syndrome is so rare individuals and families can feel isolated and very alone with no one to talk to or share their troubles and joys. This is why we set up PIP-UK and we were delighted to receive some positive feedback on our Facebook Page today !
Poland Syndrome – there are no limits. Check out Judi all grown up and still as nimble as ever. Why not email, post or tweet your pictures to us.
Bullying at any age is hard to take. Any child or adult can be subjected to this cruelty. Poland Syndrome and other limb differences can sometimes make people be an easy target. Born Just Right is a blog we read regularly as Jordan’s mum shares her experiences bringing up a little girl with limb difference. Today she talks to us about a incidence of bullying and how she dealt with it.