Poland Syndrome | Meet Tasha and Harry
Mum Tasha, tells about her experience on getting a diagnosis for Poland Sydnrome for her son and how PIP-UK helped on that journey
Poland Syndrome | Father’s Story
Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience
Poland Syndrome | Starting School
Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.
Poland Syndrome | Using Games Consoles
Sharing experience about my son and using games consoles like playstation and Wii with Poland Syndrome.
Poland Syndrome | Swimming Lessons
Poland Syndrome can be a difficult diagnosis for parents but there will come a time when you don’t feel the need to explain to everyone.
Poland Syndrome | Sharing Melissa’s Story
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.
Poland Syndrome | Bullying, School and Inclusion
Children start noticing differences at a young age. I share my own experience of my son’s first encounter with bullying at school, how it made me feel and what we did.
Poland Syndrome | Preparing Your Child for Surgery
Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier
Advice on Buying a Bra and Swimwear.
Poland Syndrome in girls is less common than men. Reconstructive surgery is an option when a girl is old enough until then here is some useful advice
Poland Syndrome | Teenagers and body image
People with Poland Syndrome will at varying points in their life address the issue of body image. It’s important we start to find the right tools to help