Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.
Nancy became a big sister to a new born baby brother who was born with Poland Syndrome and shares her experience of watching her baby brother grow up
Mum Tasha, tells about her experience on getting a diagnosis for Poland Sydnrome for her son and how PIP-UK helped on that journey
Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience
Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.
Sharing experience about my son and using games consoles like playstation and Wii with Poland Syndrome.
Poland Syndrome can be a difficult diagnosis for parents but there will come a time when you don’t feel the need to explain to everyone.
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.
Children start noticing differences at a young age. I share my own experience of my son’s first encounter with bullying at school, how it made me feel and what we did.