Poland Syndrome | Advice for Parents?
We found this posted on another website… have a read and tell us what you think. Do you agree?
Poland Syndrome | Finger Braces
Using finger braces as a therapy for Poland Syndrome was a new discovery for us. We spoke to Crystal about this who has recently started this therapy today she shares her story with us.
Short Stories | One Hand Smaller
One of the characteristics of Poland Syndrome is that one hand is smaller than the other. The hand may webbed fingers, fused fingers or missing fingers altogether. We share a short story we found about this physical appearance.
Short Stories | Workplace Bully
Poland Syndrome a rare birth defect causes visual differences that are noticeable children making them easy targets to be be bullied at school. But what happens when the join the workforce?
Short Stories | Buying Gloves
“For every action there is an equal an opposite reaction” – Sir Isaac Newton. Newton was of course referring to physics theories but we believe today’s short story means it can apply to the human race too.
Just diagnosed with Poland Syndrome
47 year old who has only just found out she has Poland Syndrome shares her story so others can learn.
Poland Syndrome not Recognised
We’ve reported a few times about Poland Syndrome not be diagnosed correctly. But were saddened when we heard this story from a young man.
Poland Syndrome Robohand
UNLV Engineers develop a special robohand for Hailey Dawson who has Poland Syndrome this short video explains how. (Video takes a little while to start please be patient)
Poland Syndrome | Please Ask Me!
Being the parent of a child who has Poland Syndrome can often lead to people staring. Brody’s Mum wrote to us recently with her thoughts on this
Poland Syndrome | Brody Stands Up
Brody has “Poland’s Sequence” (alternative name for Poland Syndrome) and after some recent therapy has started to stand up more confidently.