Finding Community in Rare Disease

Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.

Poland Syndrome | Missing Muscle

The Mystery of the Missing Muscle I am a 67 year old man with Poland Syndrome – though up until a few years ago I had no idea that is what it is called. It was only after hearing the Sussex cricketer Lewis Hatchett speak about the condition on Test Match Special that...

Poland Syndrome | Father’s Story

Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience

Poland Syndrome | Starting School

Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.

Poland Syndrome | Swimming Lessons

Poland Syndrome can be a difficult diagnosis for parents but there will come a time when you don’t feel the need to explain to everyone.