Poland Syndrome – Getting Older
This information was kindly provided by Shirley in our Poland Syndrome Facebook Group. Shirley gave us permission to publish her account to our blog post. Our hope is this will be of use to others who are experiencing life as an older person living with Poland...Mental Health Resources for the Poland Syndrome Community
Links and information to organisations who can help with mental health for our Poland Syndrome Community. Information for children and adults.
Finding Community in Rare Disease
Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.
Poland Syndrome | Missing Muscle
The Mystery of the Missing Muscle I am a 67 year old man with Poland Syndrome – though up until a few years ago I had no idea that is what it is called. It was only after hearing the Sussex cricketer Lewis Hatchett speak about the condition on Test Match Special that...Big Sister- To a Very Special Little Boy.
Nancy became a big sister to a new born baby brother who was born with Poland Syndrome and shares her experience of watching her baby brother grow up
Poland Syndrome | Meet Tasha and Harry
Mum Tasha, tells about her experience on getting a diagnosis for Poland Sydnrome for her son and how PIP-UK helped on that journey
Poland Syndrome | Father’s Story
Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience
Poland Syndrome | Starting School
Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.
Poland Syndrome | Using Games Consoles
Sharing experience about my son and using games consoles like playstation and Wii with Poland Syndrome.