We found this posted on another website… have a read and tell us what you think. Do you agree?
Using finger braces as a therapy for Poland Syndrome was a new discovery for us. We spoke to Crystal about this who has recently started this therapy today she shares her story with us.
One of the characteristics of Poland Syndrome is that one hand is smaller than the other. The hand may webbed fingers, fused fingers or missing fingers altogether. We share a short story we found about this physical appearance.
Poland Syndrome a rare birth defect causes visual differences that are noticeable children making them easy targets to be be bullied at school. But what happens when the join the workforce?
“For every action there is an equal an opposite reaction” – Sir Isaac Newton. Newton was of course referring to physics theories but we believe today’s short story means it can apply to the human race too.
47 year old who has only just found out she has Poland Syndrome shares her story so others can learn.
We’ve reported a few times about Poland Syndrome not be diagnosed correctly. But were saddened when we heard this story from a young man.
UNLV Engineers develop a special robohand for Hailey Dawson who has Poland Syndrome this short video explains how. (Video takes a little while to start please be patient)
Being the parent of a child who has Poland Syndrome can often lead to people staring. Brody’s Mum wrote to us recently with her thoughts on this
Brody has “Poland’s Sequence” (alternative name for Poland Syndrome) and after some recent therapy has started to stand up more confidently.