Poland Syndrome – Getting Older

This information was kindly provided by Shirley in our Poland Syndrome Facebook Group. Shirley gave us permission to publish her account to our blog post. Our hope is this will be of use to others who are experiencing life as an older person living with Poland...

Finding Community in Rare Disease

Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.

Poland Syndrome | Missing Muscle

The Mystery of the Missing Muscle I am a 67 year old man with Poland Syndrome – though up until a few years ago I had no idea that is what it is called. It was only after hearing the Sussex cricketer Lewis Hatchett speak about the condition on Test Match Special that...

Poland Syndrome | Father’s Story

Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience

Poland Syndrome | Starting School

Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.

Poland Syndrome | Swimming Lessons

Poland Syndrome can be a difficult diagnosis for parents but there will come a time when you don’t feel the need to explain to everyone.