Poland Syndrome | Hand differences
This video is a collection of stories from parents who have kids born with a hand difference. We also hear from the children who share their experience. This is a great video for everyone to watch.
Poland Syndrome | Harveys Story
Meet Mum Rio, and gorgeous son Harvey. Rio found PIP-UK after discovering her son had Poland Syndrome. We’ve been helping her out along the way and today she shares her’s and Harvey’s story with us.
Poland Syndrome | Please Ask Me!
Being the parent of a child who has Poland Syndrome can often lead to people staring. Brody’s Mum wrote to us recently with her thoughts on this
Poland Syndrome and Breast Prostheses
Poland Syndrome for young teenage girls and women can be particularly distressing as the Poland Syndrome affected side may lead to an undeveloped breast. We met Bravelle on Twitter and think they could really be helpful if you’re considering an alternative to surgery to help gain some body confidence.
You are not alone
Poland Syndrome is so rare individuals and families can feel isolated and very alone with no one to talk to or share their troubles and joys. This is why we set up PIP-UK and we were delighted to receive some positive feedback on our Facebook Page today !
Talent Does Not Count on Fingers
Today we tell you about Isabelli a beautiful little girl who was born with limb differences and is a budding musician
Supporting family members with Poland Syndrome
Twitter is a great place to share and raise awareness of Poland Syndrome. Come take a peek and see who we discovered today!
How will my child….?
When a child is born with limb differences like poland syndrome parents can often feel like they have a zillion questions and no one to ask. Well take a look at today’s post and we’ll help you answer some with a little help from Jack đŸ™‚
Parent’s milestone in journey with Poland’s Syndrome
Over the summer, the day I have been waiting for since I discovered my beautiful son had Poland’s Syndrome finally arrived……