When a child is born with limb differences like poland syndrome parents can often feel like they have a zillion questions and no one to ask. Well take a look at today’s post and we’ll help you answer some with a little help from Jack 🙂
Imperfection is Individuality – following a successful quote posted on our facebook page which seem to strike a chord with many of our readers we share this video with you today.
Today we share a video from an orthopedic surgeon discussing the different types of “syndactyly” and possible treatments. Syndactyly in the case of poland syndrome is visually seen by fused or webbed fingers.
Syndactyly of the fingers is one of the characteristics of Poland Syndrome, more commonly referred to as “webbed fingers”. This post explains in more detail what syndactyly is, how it occurs, some different types of syndactyly and how it affects the functionality and appearance of a hand.
Bryce Molder a golfer who has Poland Syndrome was interviewed recently at the PGA Tour. Read what he had to say about Poland Syndrome and his path to success
Some men can feel self-conscious about their chest area when they have Poland Syndrome. The chest muscle does not form on one side and can make men be wary of displaying their chest in public. Today we share Paul’s story and his decision to have cosmetic surgery to improve his chest area before walking down the aisle with his bride.
It’s really, really easy to help PIP-UK spread the word about Poland Syndrome all you need to do is like our page on Facebook and share with your friends and family. We have a twitter account too!
Tumblr blogger with Poland Syndrome reaching out to the community … take a look
We found a photographer exploring poland syndrome forensically as he puts it. It’s really fascinating to read and a great way to explore a persons relationship with their own physical features.