Great feedback

Great feedback

We had a fantastic message last night from one of our new followers on Facebook. Someone who didn’t previously know about Poland Syndrome.

Language of Poland Syndrome

Find out how to translate “Poland Syndrome” into the native language of the country you’re travelling too. Might come in handy if you or a family member needs medical attention

“Knowledge is Good”

Another family with Poland Syndrome contacted us! It’s been a great week for PIP-UK We have added to our stories and experience. Today’s personal story shows us there may be a genetic link as more than one generation in this family has Poland Syndrome.

Syndrome vs Disease?

Why is Poland Syndrome referred to as a syndrome and not a disease? Today we tell you what we have learned about that.

You are not alone

Poland Syndrome is so rare individuals and families can feel isolated and very alone with no one to talk to or share their troubles and joys. This is why we set up PIP-UK and we were delighted to receive some positive feedback on our Facebook Page today !

Poland Syndrome | Dancer

Poland Syndrome | Dancer

Poland syndrome shouldn’t hold you back from anything especially physical activity. Today we share a story of a young dancer who has Poland Syndrome.

Poland Syndrome – Author

Poland Syndrome – Author

During our time with PIP-UK we have made a few friends. One of these is Cynthia Sharp author of “P.S. You are Loved” a book full of stories about living with Poland Syndrome. Today we share a short note that Cynthia wrote sometime ago but is still relevant to us all.