Sharing an experience or memory or information is the life-blood of how we learn. Today we share with you another blogger who tells us about poland syndrome and includes some pictures. This post is particularly of interest to young boys who might be concerned about their image and ability to do sports.
Sharing experiences about poland syndrome helps us all to understand and to be there for those who are going through difficult times. We continue to bring you personal experiences and memories from people dealing with poland syndrome from across the globe
Some people may be wondering what surgery on little children can look like if they have webbed fingers as a result of Poland Syndrome. We have found a link which shows you pre-surgery and post surgery. There is also a final picture which shows how the scars fade into adulthood… read on to find out more.
At PIP-UK we bring you another shared experience about growing up with Poland Syndrome from childhood to adulthood. Poland syndrome for young girls can be difficult. Frequently the challenges to self-esteem are carried through to adulthood. Suanne Reiker has been through this and we share her story in search of her self-esteem.
At PIP-UK we want to spread the word about Poland Syndrome. Today we introduce you to a new blog and ask that you take 5 minutes out of your day to read about the experiences of the author. The blog is about “A woman’s story of growing up with Poland Syndrome in a world obsessed with perfection”. Some readers may find the content a little hard on the heart but we urge you to stick with it. Sharing experiences is important for us all to learn.
Why do we exist? Information on Poland Syndrome is scarce. We hear from people from all over the world who want to find out more. We’re trying to create a hub a place where people can come and find out more. To be reassured, to learn and to understand they are not alone.
Over the summer, the day I have been waiting for since I discovered my beautiful son had Poland’s Syndrome finally arrived……