Poland Syndrome | Sharing Melissa’s Story
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.
Poland Syndrome | Bullying, School and Inclusion
Children start noticing differences at a young age. I share my own experience of my son’s first encounter with bullying at school, how it made me feel and what we did.
Poland Syndrome | Preparing Your Child for Surgery
Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier
Poland Syndrome | Supporting Parents
We work in lots of different ways to help those dealing with Poland Syndrome. Liz our trustee shares an account from a mother we helped recently dealing with concerns about her child growing up with Poland Syndrome
Poland Syndrome | Be The Voice of Your Child
Poland Syndrome is so rare that dealing with medical professionals can be frustrating and difficult. Finding your own voice for your child can be stressful but so important.
Advice on Buying a Bra and Swimwear.
Poland Syndrome in girls is less common than men. Reconstructive surgery is an option when a girl is old enough until then here is some useful advice
Poland Syndrome | Breathing Difficulties
Is there a correlation between Poland Syndrome and breathing difficulties if someone has an upper respiratory infection? What is your experience?
Poland Syndrome | The Discovery
Poland Syndrome is something a person is born with but it is not always detectable until a child grows and develops and differences become apparent
Poland Syndrome | Finger Braces
Using finger braces as a therapy for Poland Syndrome was a new discovery for us. We spoke to Crystal about this who has recently started this therapy today she shares her story with us.
Poland Syndrome | Story – One Hand Smaller
One of the characteristics of Poland Syndrome is that one hand is smaller than the other. The hand may webbed fingers, fused fingers or missing fingers altogether. We share a short story we found about this physical appearance.