Poland Syndrome | Supporting Parents

We work in lots of different ways to help those dealing with Poland Syndrome. Liz our trustee shares an account from a mother we helped recently dealing with concerns about her child growing up with Poland Syndrome

Poland Syndrome | Be The Voice of Your Child

Poland Syndrome is so rare that dealing with medical professionals can be frustrating and difficult. Finding your own voice for your child can be stressful but so important.

Advice on Buying a Bra and Swimwear.

Poland Syndrome in girls is less common than men. Reconstructive surgery is an option when a girl is old enough until then here is some useful advice

Poland Syndrome | The Discovery

Poland Syndrome is something a person is born with but it is not always detectable until a child grows and develops and differences become apparent

Poland Syndrome | Finger Braces

Using finger braces as a therapy for Poland Syndrome was a new discovery for us. We spoke to Crystal about this who has recently started this therapy today she shares her story with us.

Poland Syndrome | Story – One Hand Smaller

One of the characteristics of Poland Syndrome is that one hand is smaller than the other. The hand may webbed fingers, fused fingers or missing fingers altogether. We share a short story we found about this physical appearance.

Poland Syndrome | Story – Buying Gloves

“For every action there is an equal an opposite reaction” – Sir Isaac Newton. Newton was of course referring to physics theories but we believe today’s short story means it can apply to the human race too.

Poland Syndrome | Helping Kids

Poland Syndrome | Helping Kids

Watching a child with limb difference struggle to do things can be hard. You instinctively want to help. To step in and make a suggestion. We share one mum’s experience of just this situation.