We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.
Children start noticing differences at a young age. I share my own experience of my son’s first encounter with bullying at school, how it made me feel and what we did.
Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier
We work in lots of different ways to help those dealing with Poland Syndrome. Liz our trustee shares an account from a mother we helped recently dealing with concerns about her child growing up with Poland Syndrome
Poland Syndrome is so rare that dealing with medical professionals can be frustrating and difficult. Finding your own voice for your child can be stressful but so important.
Poland Syndrome in girls is less common than men. Reconstructive surgery is an option when a girl is old enough until then here is some useful advice
Is there a correlation between Poland Syndrome and breathing difficulties if someone has an upper respiratory infection? What is your experience?
Poland Syndrome is something a person is born with but it is not always detectable until a child grows and develops and differences become apparent
Using finger braces as a therapy for Poland Syndrome was a new discovery for us. We spoke to Crystal about this who has recently started this therapy today she shares her story with us.
One of the characteristics of Poland Syndrome is that one hand is smaller than the other. The hand may webbed fingers, fused fingers or missing fingers altogether. We share a short story we found about this physical appearance.