Find out what it is like to be a trustee and help other people. Supporting families and individuals living with poland syndrome is the life blood of PIP-UK
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Poland Syndrome in 10 Basic Fact Sheets
Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.
A short note about some of the work we do and how we can help you on your Poland Syndrome journey
Sometimes you have to just keep going back to the doctor to get the right treatment. Sam shares her experience about dealing with the medical professionals to get some phsyio treatment for her son,
It’s that time of year to start thinking about all the school uniforms, stationery, lunch boxes, shoes and all the other multitude of things you’ll need for the school year in September. Well if you are ordering on-line, you could be raising a free donation for PIP-UK and helping families affected by Poland syndrome.
Did you know it might be possible to get a Personal Independence Payment if you have Poland Syndrome? Find out more by reading this post
Sharing experience about my son and using games consoles like playstation and Wii with Poland Syndrome.
Poland Syndrome can be a difficult diagnosis for parents but there will come a time when you don’t feel the need to explain to everyone.