Poland Syndrome not Recognised
We’ve reported a few times about Poland Syndrome not be diagnosed correctly. But were saddened when we heard this story from a young man.
Language of Poland Syndrome
Find out how to translate “Poland Syndrome” into the native language of the country you’re travelling too. Might come in handy if you or a family member needs medical attention
“Knowledge is Good”
Another family with Poland Syndrome contacted us! It’s been a great week for PIP-UK We have added to our stories and experience. Today’s personal story shows us there may be a genetic link as more than one generation in this family has Poland Syndrome.
Syndrome vs Disease?
Why is Poland Syndrome referred to as a syndrome and not a disease? Today we tell you what we have learned about that.
You are not alone
Poland Syndrome is so rare individuals and families can feel isolated and very alone with no one to talk to or share their troubles and joys. This is why we set up PIP-UK and we were delighted to receive some positive feedback on our Facebook Page today !
Poland Syndrome | Dancer
Poland syndrome shouldn’t hold you back from anything especially physical activity. Today we share a story of a young dancer who has Poland Syndrome.
Poland Syndrome Name Variation
Poland syndrome has a few different names. Read on to find out more
How will my child….?
When a child is born with limb differences like poland syndrome parents can often feel like they have a zillion questions and no one to ask. Well take a look at today’s post and we’ll help you answer some with a little help from Jack 🙂
New Syndrome or Poland Syndrome?
Published in “The Official Journal Of The Society of Thoraic Surgeons and The Southern Thoraic Surgical Association” is an article about the possibility of a new potential categorisation of Poland Syndrome. Below is the abstract from the article which can...Different Syndactyly and Treatments
Today we share a video from an orthopedic surgeon discussing the different types of “syndactyly” and possible treatments. Syndactyly in the case of poland syndrome is visually seen by fused or webbed fingers.