Big Sister- To a Very Special Little Boy.
Nancy became a big sister to a new born baby brother who was born with Poland Syndrome and shares her experience of watching her baby brother grow up
Nancy became a big sister to a new born baby brother who was born with Poland Syndrome and shares her experience of watching her baby brother grow up
Mum Tasha, tells about her experience on getting a diagnosis for Poland Sydnrome for her son and how PIP-UK helped on that journey
Is there a correlation between Poland Syndrome and breathing difficulties if someone has an upper respiratory infection? What is your experience?
People with Poland Syndrome will at varying points in their life address the issue of body image. It’s important we start to find the right tools to help
Poland Syndrome is something a person is born with but it is not always detectable until a child grows and develops and differences become apparent
Poland Syndrome seen through the eyes of an 8 year old. Read the story Grace wrote about her cousin George who has Poland Syndrome
We found this posted on another website… have a read and tell us what you think. Do you agree?
Poland Syndrome a rare birth defect causes visual differences that are noticeable children making them easy targets to be be bullied at school. But what happens when the join the workforce?
This video is a collection of stories from parents who have kids born with a hand difference. We also hear from the children who share their experience. This is a great video for everyone to watch.
Meet Mum Rio, and gorgeous son Harvey. Rio found PIP-UK after discovering her son had Poland Syndrome. We’ve been helping her out along the way and today she shares her’s and Harvey’s story with us.