Another family with Poland Syndrome contacted us! It’s been a great week for PIP-UK We have added to our stories and experience. Today’s personal story shows us there may be a genetic link as more than one generation in this family has Poland Syndrome.
Why is Poland Syndrome referred to as a syndrome and not a disease? Today we tell you what we have learned about that.
Poland Syndrome is so rare individuals and families can feel isolated and very alone with no one to talk to or share their troubles and joys. This is why we set up PIP-UK and we were delighted to receive some positive feedback on our Facebook Page today !
We created a slide share about PIP-UK and Poland Syndrome. Come and have a look and tell us what you think !
Poland syndrome has a few different names. Read on to find out more
When a child is born with limb differences like poland syndrome parents can often feel like they have a zillion questions and no one to ask. Well take a look at today’s post and we’ll help you answer some with a little help from Jack 🙂
Today we share a video from an orthopedic surgeon discussing the different types of “syndactyly” and possible treatments. Syndactyly in the case of poland syndrome is visually seen by fused or webbed fingers.
Syndactyly of the fingers is one of the characteristics of Poland Syndrome, more commonly referred to as “webbed fingers”. This post explains in more detail what syndactyly is, how it occurs, some different types of syndactyly and how it affects the functionality and appearance of a hand.