Poland Syndrome Support
Currently Browsing: News

Big Sister- To a Very Special Little Boy.

My baby brother was born on the 25th September 2015, the day I finally became a big sister. I remember finding out about his condition [Poland syndrome] and feeling sad yet proud to be his big sister. Not knowing what the future held and the difficulties he may face. I remember seeing his small, cute and webbed hand and wondering how this happened and how it would affect him. I never really noticed...

Free ways to raise funds- Clothes for Charity

Donate your unwanted clothes to help PIP-UK raise money

Belfast Marathon 2016 Raing funds for PIP-UK.

2016 Deep RiverRock Belfast City Marathon Belfast will host the 2016 event on Bank Holiday Monday 2nd May. Over 17,500 runners are expected to hit the streets of North, South, East and West of the City. We have been contacted by Debi who lives in Belfast. She has P.S. and has told us a sadly familiar story of having P.S. and growing up feeling alone and an outsider because of her P.S. not being able to take part in...

Poland Syndrome | Meet Tasha and Harry

Mum Tasha, tells about her experience on getting a diagnosis for Poland Sydnrome for her son and how PIP-UK helped on that journey

Guest Post – Stephens Story

PIP-UK recently met Stephen who will be helping us on our journey educating and raising awareness about Poland Syndrome.

Make a difference to someone.

Find out how to get involved with PIP-UK

Poland Syndrome Winter Gloves

Poland syndrome winter gloves can be hard to come by. When you have one hand smaller than the other or missing fingers. We’ve found someone who can help

Poland Syndrome Father’s Story

Poland Syndrome Father’s are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience

Poland Syndrome | Being a Trustee

Find out what it is like to be a trustee and help other people. Supporting families and individuals living with poland syndrome is the life blood of PIP-UK

Poland Syndrome Newsletter

Poland Syndrome newsletter is now available. Get your weekly edition sent to your mailbox

« Previous Entries

Copyright PIP-UK Poland Syndrome Charity 2015 | Designed by Tkey. | Based on Puretype by Elegant Themes