Syndrome vs Disease?
Why is Poland Syndrome referred to as a syndrome and not a disease? Today we tell you what we have learned about that.
You are not alone
Poland Syndrome is so rare individuals and families can feel isolated and very alone with no one to talk to or share their troubles and joys. This is why we set up PIP-UK and we were delighted to receive some positive feedback on our Facebook Page today !
Talent Does Not Count on Fingers
Today we tell you about Isabelli a beautiful little girl who was born with limb differences and is a budding musician
Poland Syndrome | Dancer
Poland syndrome shouldn’t hold you back from anything especially physical activity. Today we share a story of a young dancer who has Poland Syndrome.
Poland Syndrome – Author
During our time with PIP-UK we have made a few friends. One of these is Cynthia Sharp author of “P.S. You are Loved” a book full of stories about living with Poland Syndrome. Today we share a short note that Cynthia wrote sometime ago but is still relevant to us all.