Poland Syndrome Support

Big Sister- To a Very Special Little Boy.

My baby brother was born on the 25th September 2015, the day I finally became a big sister. I remember finding out about his condition [Poland syndrome] and feeling sad yet proud to be his big sister. Not knowing what the future held and the difficulties he may face. I remember seeing his small, cute and webbed hand and wondering how this happened and how it would affect him. I never really noticed...

Free ways to raise funds- Clothes for Charity

Donate your unwanted clothes to help PIP-UK raise money

Belfast Marathon 2016 Raing funds for PIP-UK.

2016 Deep RiverRock Belfast City Marathon Belfast will host the 2016 event on Bank Holiday Monday 2nd May. Over 17,500 runners are expected to hit the streets of North, South, East and West of the City. We have been contacted by Debi who lives in Belfast. She has P.S. and has told us a sadly familiar story of having P.S. and growing up feeling alone and an outsider because of her P.S. not being able to take part in...

Guest Post – Stephens Story

PIP-UK recently met Stephen who will be helping us on our journey educating and raising awareness about Poland Syndrome.

Make a difference to someone.

Find out how to get involved with PIP-UK

Poland Syndrome | Being a Trustee

Find out what it is like to be a trustee and help other people. Supporting families and individuals living with poland syndrome is the life blood of PIP-UK

Poland Syndrome | We can help

A short note about some of the work we do and how we can help you on your Poland Syndrome journey

Happy Birthday George

Happy Birthday to the little boy who started us on a wonderful journey

AGM 2015

The AGM Will be held on 12 Noon on Saturday 19th September.

Poland Syndrome | PIP payment (UK only)

Did you know it might be possible to get a Personal Independence Payment if you have Poland Syndrome? Find out more by reading this post

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