Sharing experience about my son and using games consoles like playstation and Wii with Poland Syndrome.
Poland Syndrome can be a difficult diagnosis for parents but there will come a time when you don’t feel the need to explain to everyone.
Children start noticing differences at a young age. I share my own experience of my son’s first encounter with bullying at school, how it made me feel and what we did.
We’re on a mission to create the first UK Poland Syndrome patient group and to enable UK medical professionals to meet with experts from across Europe to create a center of excellence in terms of knowledge and experience. This is our first step.
Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier