Finding Community in Rare Disease
Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.
The Woods family in the press raising awareness for Poland’s Syndrome
Robbie Wood is raising money for PIP-UK by running the Aberdeen Half Marathon later this year. Robbie came across PIP-UK after finding out his little boy had been born with Poland Syndrome. Now along with several colleagues they plan to raise £10,000 for PIP-UK to enable the charity to support and help other families.
Poland Syndrome at Edinburgh Festival fringe
PIP-UK is a proud sponsor of Richard Stott’s Theatrical Comedy about his personal experience of living with Poland Syndrome.
Poland Syndrome | Starting School
Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.
Poland Syndrome | Getting the right treatment
Sometimes you have to just keep going back to the doctor to get the right treatment. Sam shares her experience about dealing with the medical professionals to get some phsyio treatment for her son,