Just diagnosed with Poland Syndrome
47 year old who has only just found out she has Poland Syndrome shares her story so others can learn.
Poland Syndrome not Recognised
We’ve reported a few times about Poland Syndrome not be diagnosed correctly. But were saddened when we heard this story from a young man.
Poland Syndrome | Please Ask Me!
Being the parent of a child who has Poland Syndrome can often lead to people staring. Brody’s Mum wrote to us recently with her thoughts on this
Born with Poland’s Syndrome
A short while ago we told you about a survey we conducted on “The Age of Diagnosis for Poland Syndrome” We still get people adding comments to this and today we share a rare event of a baby being diagnosed almost at birth.
Poland Syndrome: Don’t hide it!
Two short stories about Poland Syndrome and being confident about who you are. Most people don’t notice the smaller hand and here’s what to say if they do