Some people may be wondering what surgery on little children can look like if they have webbed fingers as a result of Poland Syndrome. We have found a link which shows you pre-surgery and post surgery. There is also a final picture which shows how the scars fade into adulthood… read on to find out more.
At PIP-UK we bring you another shared experience about growing up with Poland Syndrome from childhood to adulthood. Poland syndrome for young girls can be difficult. Frequently the challenges to self-esteem are carried through to adulthood. Suanne Reiker has been through this and we share her story in search of her self-esteem.
Sharing experiences about Poland Syndrome helps us all to understand what might be coming for a younger generation and also what we can do to support our friends and family. We featured a new blog we found a few weeks ago about one persons account of living with Poland Syndrome. Thanks to our readers she has posted again….
At PIP-UK we want to spread the word about Poland Syndrome. Today we introduce you to a new blog and ask that you take 5 minutes out of your day to read about the experiences of the author. The blog is about “A woman’s story of growing up with Poland Syndrome in a world obsessed with perfection”. Some readers may find the content a little hard on the heart but we urge you to stick with it. Sharing experiences is important for us all to learn.
Why do we exist? Information on Poland Syndrome is scarce. We hear from people from all over the world who want to find out more. We’re trying to create a hub a place where people can come and find out more. To be reassured, to learn and to understand they are not alone.