Finding Community in Rare Disease
Angel shares her experience of not realising that she was looking for a community. Until she found the PIP-UK Poland Syndrome Support charity.
Poland Syndrome | Missing Muscle
The Mystery of the Missing Muscle I am a 67 year old man with Poland Syndrome – though up until a few years ago I had no idea that is what it is called. It was only after hearing the Sussex cricketer Lewis Hatchett speak about the condition on Test Match Special that...Richard Stott – Wretched (Poland Syndrome)
PIP-UK went to see Richard Stott’s show at the Edingburgh Fringe Festival. Richard is an actor who has Poland Syndrome. His show “Wretched” is all about his personal experience of living with Poland Syndrome.
Big Sister- To a Very Special Little Boy.
Nancy became a big sister to a new born baby brother who was born with Poland Syndrome and shares her experience of watching her baby brother grow up
Poland Syndrome | Meet Tasha and Harry
Mum Tasha, tells about her experience on getting a diagnosis for Poland Sydnrome for her son and how PIP-UK helped on that journey