Family fun day with our friends at Poland Syndrome Support Group (PSSG). Getting families together to have a great day out. To share experiences and learn from others. The kids love Conkers in Derby which is where the event is to be held. Its Saturday, 20th September 2014.
We found this posted on another website… have a read and tell us what you think. Do you agree?
Aimee Lax wrote to us a few weeks ago asking if she could run for PIP-UK at the Cheltenham Half Marathon. We said yes. Aimee’s nephew has Poland Syndrome
Using finger braces as a therapy for Poland Syndrome was a new discovery for us. We spoke to Crystal about this who has recently started this therapy today she shares her story with us.