The beautiful little boy in the picture is our inspiration for PIP-UK – Poland Syndrome Charity.
There are many children born in the UK and across the world with a rare syndrome called Poland Syndrome. (Find out more on the next slide)
Very little is known about Poland Syndrome and it’s hard to find the right people in the know in the medical community.
At PIP-UK we want to change this situation and make sure people get access to the right information for them, at the right time!
Welcome to our site and stay a few minutes to take a look around
Poland syndrome is visibly seen by a smaller hand (which may include webbed fingers at birth) and this is frequently accompanied by an under-developed chest on the same side. The degree of severity of Poland Syndrome and it’s symptoms differs between people but thankfully for the majority of people it is not life threatening.
Poland Syndrome is often not diagnosed at all. In fact since the inception of PIP-UK we have come across many stories of people who were well into adulthood before they even knew they had Poland Syndrome.
We want to change this situation and so we set up PIP-UK to raise awareness of Poland Syndrome around the UK and across the globe.
To see what we’ve done to date take a look at our PIP in Action section of the site.
We are pleased to have been contacted by people from around the world on our quest to share information about Poland Syndrome.We hold various events throughout the year to raise money for the charity.
This picture is taken from team PIP-UK who ran the Stockport 10K in 2012 and again in 2013. We look forward to round 3 this year!
PIP-UK has 3 main aims:
1. Educate people about Poland Syndrome
2. Provide a support network to people with Poland Syndrome and their friends and family members
3. Put people in touch with the right medical professionals who can give the best advice
Our shared experiences section has videos on all sorts of things like how to tie shoelaces. There are stories which demonstrate that Poland Syndrome should not hold you back from anything!