Poland Syndrome: One Young Lady’s Experience by Anna - Trustee | 4 comments Related Posts:Who has PIP-UK Helped?‘P.S You are Loved’Useful Information for Young Girls with Poland SyndromeRichard Stott – Wretched (Poland Syndrome)Big Sister- To a Very Special Little Boy. 4 Comments Lori on April 2, 2014 at 6:11 pm Wow what a great and informative video. I was also born with Poland Syndrome and thought that chronic pain was just part of what I would have to deal with for the rest of my life. Nearing 50 I have been to my share of doctors and not one has suggested such detailed yet simple solutions. I’m feeling hopeful for the first time in a very long time. Now I have a starting point and hope to get my quality of life back, something I have almost completely lost both physically and mentally. It’s great to know that this is being talked about more and more each day. With that said, I hope society and physicians will become aware of what Poland Syndrome is all about and unite to help with the everyday suffering both physically and mentally that we in this small community endure. And to all my fellow Poland Syndrome community, we must learn from Mary Panjoma and find ways to be heard. Sincerely, Lori Reply PIP-UK on April 2, 2014 at 8:46 pm Thank you Lori for your supportive comments. We hope Poland Syndrome is researched more ans understood too! Reply Dean Fergusson on April 26, 2015 at 1:21 pm Really good video, thanks Mary… Empathised so much, I think support for prepubescent and adolescent sufferers should be highlighted… It’s a contradiction when you’re so self-conscious yet being affected by social and peer group norms at this age… Thinking you need to fit in yet feeling different can create an internal schism thus affecting self-image and confidence and I believe if you can address this it makes the physical difference you have easier to cope with and/or integrate into your psyche / personality. Thanks again, Mary… Keep sweet…and Anna…!xx Reply PIP Admin on April 26, 2015 at 8:08 pm thank you Dean for dropping us a line. Glad you found the video useful Reply Submit a Comment Cancel reply Your email address will not be published. Required fields are marked *Comment Name * Email * Website This site uses Akismet to reduce spam. Learn how your comment data is processed.