Poland syndrome is not always diagnosed at birth. Sometimes parents notice a “sunken chest” on one side. Today we share an account with you from Protected Tomorrow’s Website  A parent recalls how they discovered their son had Poland Syndrome:

I was keeping an eagle eye on my preschooler that summer day at the gorge. Sharp rocks, swift water, stinging insects – so many dangers for an overprotective mother to worry about. But cause for concern was about to come from a totally unexpected place.
Amir had come out of the water and was shivering as his dad dried him off with a big towel. Suddenly my husband called to me with concern in his voice.

“Look at Amir’s chest!” he said. “What’s wrong with it?”

I looked at my shivering son. His right side looked flatter and more caved in than his left side. The right nipple was higher up on his chest than the left. It wasn’t red or swollen, however.

“We have to take him to the emergency room,” my husband said. He was already packing up the blankets and picnic gear. I wasn’t sure it was an emergency situation. But could Amir’s chest have been like that for a long time without my having ever noticed it?

Our next-door neighbor was a surgeon and good friend, so I convinced my husband to call him when we got home. He examined Amir and said he had Poland’s syndrome, a congenital difference. He made Amir put his hands in prayer position and showed us that the fingers of his right hand were smaller than those of his left.

“Amir has had this since birth,” the doctor told us. “It’s very rare; your pediatrician quite possibly is not even familiar with it. He doesn’t have a pectoral muscle on the right side; that’s why his chest looks so flat.

“Amir’s case is not too severe. Don’t feel bad about not having noticed it. There’s nothing you could have done to prevent it, and it’s not a disease. It’s not going to get any better or worse.”

Unfortunately Amir’s parental discovery is not as uncommon as you might think. PIP-UK is here to change all that. We want to raise awareness by running our charity and sharing stories on this website. If you would like to share you story to help others why not drop us a line via our contact us page. We will keep details anonymous if that is what you prefer.

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