The great thing about social media is being able to connect with people who understand you and can relate to what is happening in your life. At PIP-UK we are frequently contacted and hear about people with Poland Syndrome who think they are the only ones. It is a rare syndrome and it can sometimes be hard to find someone who has been there and can give you some advice or support. Reading about how others are feeling or dealing with day to day life can really help. We found this page on tumblr which pulls together all the recent posts on Poland Syndrome. You don’t have to sign up to see it! Take a look and see what you think.