Raise Awareness of Poland Syndrome and Get Involved




raise awareness of poland syndrome


Social Media:


PIP-UK’s primary goal is to be visible and raise awareness of Poland Syndrome. You can help this by sharing our Poland Syndrome Blog posts, following us on Twitter, LinkedIn, Facebook, Tumblr, Pinterest and Google+. The more people like, comment and share the information we post the more likely it is to be seen by those who need it. 


Share Your Story


Share your story to raise awareness of Poland Syndrome – every time we get contacted by a worried parent or an individual about Poland Syndrome they always say I didn’t think anybody else knew about it. Poland Syndrome is so rare it can make families and people feel isolated. The more experiences we share here the more we all learn and encourage one another.


Free Ways to Donate


Free ways to donate – you pay nothing, just go about your everyday activities with a little change. Take a look we promise it is FREE to you. Every penny we get helps us continue to raise awareness of Poland Syndrome


Hold your own fundraising event 


Hold a coffee morning, craft afternoon, sponsored walk or silence. Get the whole family involved and invite friends and family to join in. If you want some material and help from us we would be delighted to support you.  You can set up a Just giving page here https://www.justgiving.com/pipuk.  We’ll make sure we post your event on all our sites too! Contact Us



Share this page so others can get involved to raise awareness of Poland Syndrome