Family Support
At PIP-UK we have a growing Poland Syndrome network. We know from our own experiences getting in touch with someone who knows what you’re going through with Poland Syndrome is really important. You can reach us by e-mail or telephone in our contact us section.
We also have our shared experiences section which has stories from all over the world from individuals who have poland syndrome and parents raising a child with poland syndrome. You can gain some insight into what to expect next for child and listen to what other people have been through, find out what it is really like to grow up with Poland Syndrome.
PIP-UK’s POLAND SYNDROME COMMUNITY : FAMILY AND FRIENDS
Our PIP-UK family grows every year with the people we meet who have Poland Syndrome and other limb differences as well as other organisations who can help you or help us become a better support for you all.
GuiGui Zheng (Piano Player – with no hands)
PSSG – Poland Syndrome Support Group
Hunter (Poland Syndrome and Autism)
Harvey (Poland Syndrome)
Jay Jay (Poland Syndrome – budding baseball player)
Brody (Poland Syndrome)
Isabella (Budding musician)
Regan Ford (Poland Syndrome – Dancer)
Born Just Right (Blogger – about living with limb difference)
Huw – Self Portrait (Poland Syndrome Photograher)
Sam and George (our Inspiration)
Mary Panjoma (Poland Syndrome – Singer)
John Peterson (Poland Syndrome – Banjo Player)
Mario Padovani (Poland Syndrome – Musician)
Bryce Molder (Poland Syndrome – Golfer)
Woody Bavota (Poland Syndrome – Director)
Craig Green (Cyclist training for 2016 Olympics)
Paralympic Athlete – Matthew Silcocks (Poland Syndrome)
Paralympic Athlete – Kevin Paul (Swimmer with Poland Syndrome)
Paralympic Athlete – Kim Daniel Daybell (Poland Syndrome – Table Tennis)
The Lucky Fin Project (Based in US)
Dante
Book about Poland Syndrome Experiences By Cynthia L Sharp
Super Hero Hands (Organisation)
The Foundation for Social Improvement (Supports small charities)
The Helping Hands Foundation (Organisation)