Poland Syndrome in 10 Basic Fact Sheets
We connected with Faraz earlier this year who has started a web page about body building and poland syndrome. This is Faraz’s introduction to the site that he has created.
We recently connected with Melissa who has started a Poland Syndrome blog and asked us to share her story with us.
Friend and supporter to PIP-UK Val, shares her experience of volunteering. Read about her account of a recent visit to meet European societies as PIP-UK works to build a network of medical expertise for Poland Syndrome. Make sure you read to the end there’s an extra special bit of news!
Guest post from Ben Popp who shares his experience of life with Poland Syndrome and is aspiring to become the first model with Poland Syndrome