Poland Syndrome is rare birth defect. So rare the actual number of incidences of Poland Syndrome across the UK and in fact the world is not known. It is estimated to be between 1 in 7,000 births to 1 in 30,000 births. It is more common in men than women in fact about it has been suggested the occurrence is like to be 75% more common in men.
Poland Syndrome appears visually on one side of the body, the chest can appear sunken on one side, and is frequently accompanied by a smaller hand on the same side. At birth there may be missing fingers, webbed fingers or joined digits. This is referred to as syndactyly. There has been some research to suggest around 10% of people who were born with syndactyly were also born with Poland Syndrome.
Poland Syndrome is frequently not diagnosed correctly due to its rarity. We are frequently contacted about people of all ages only just discovering a diagnosis for Poland Syndrome from 1 years old all way up to 60+ years old. PIP-UK is working to raise awareness. To be found in the digital world and to reach out to people to let them know they are not alone. We have found many people or families feel isolated by Poland Syndrome believing there is no one else out there who knows about it or can understand. We regularly post stories and share experiences from people and families across the globe.
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