Poland Syndrome Support

Sharing PIP-UK’s founders story in run up to Rare Disease Day tomorrow

lucy

 

In the run up to Rare Disease Day 28th February 2013, Dysnet asked that I share my families story about Poland’s Syndrome, thanks for letting us share and we are excited to take part in rare disease day.  You can read the story by clicking here.  Come back tomorrow for more about Rare Disease Day.

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