Poland Syndrome Support

Share your own Poland Syndrome Story

in_my_own_words
Today we want to encourage you to share your own Poland Syndrome story. There are lots of people out there who think they are the only one who has Poland Syndrome or has a child with Poland Syndrome. Well, here at PIP-UK we’re trying to change all that. We want our readers to share their own stories and experiences. The good, the bad and the ugly anyway it comes. Talking about Poland Syndrome helps us all learn and creates a place where you can share ideas.

We bring you shared experiences from across the web and try to pull them into one place. One portal where everyone can find something they’re looking for. So why don’t you share your story? We have set up a page where you can write to us.

If you want to tell your story but keep it anonymous we can do that. If you don’t want personal pictures published, no problem we can also handle that. If you’re happy to share everything then get stuck in and write to us. Maybe you want to write in short spurts and just give us a one-off memory. Whatever it is let us know and we’ll publish your story.

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5 Responses to “Share your own Poland Syndrome Story”

  1. debbie topham says:

    I am a 51 year old female and was born with polands syndrome, having read other peoples stories who suffer from this condition I consider myself very lucky as although i never deleloped a right breast i have no other symptoms of the condition and am otherwise very health.I have had several breast operations over the years and have just recently had fat grafting to my breast, would be really good to hear from people who have this condition.

  2. dave woodward says:

    hi im 54 and only found out a few years about ps after the programme embarrassing bodies even after all the doctors saw me as I was growing up all through my life not many people saw my chest I kept it covered up

    • debbie topham says:

      To dave woodward Have just read your comment about you having ps, it is good to here from someone who has the same condition as i have never come into contact with anyone who suffers from it apart from like yourself seeing someone on embarrassing bodies hope all is well with you.

  3. Sam - Trustee says:

    Hi Debbie and Dave

    Thanks so much for getting in touch and sharing your stories. My son is 5 and has Poland Syndrome so its always wonderful to hear and adults experience to help me understand some things that he may go through over the years.

    There are lots of support on facebook and the Poland Syndrome Support Group (pssg) is even meeting up in Derby this weekend. You can join the group here https://www.facebook.com/groups/110595298970859/

    Thanks again for getting in touch and sharing your story.

    Kind Regards

    Sam – Founder PIP-UK

    • debbie topham says:

      Hi sam thanks for your message,read an article about your son and noticed you live in ashton, I live in ashton aswell so would be good to meet up with you sometime. Debbie

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