Poland Syndrome Support

Poland Syndrome: One Young Lady’s Experience

This is a great video from a young lady who has poland syndrome in her own words she describes what you can expect from this video.....

My name is Mary Panjoma and I sing for the band Panjoma here in Austin, Texas. I was born with Poland Syndrome. I made this video for those suffering from pain from Poland Syndrome, and for young people (especially women) to discuss breast and body image. By discussing my trials and tribulations, I hope to help people who are in pain, help prevent pain in those who do not have any, and to help young girls better understand their bodies. For young women specifically, I discuss my own experiences with breast implants and confidence.

We hope you enjoyed hearing from Mary. We certainly did. Please let us know your thoughts by leaving a comment below. 

Related Posts:

4 Responses to “Poland Syndrome: One Young Lady’s Experience”

  1. Lori says:

    Wow what a great and informative video. I was also born with Poland Syndrome and thought that chronic pain was just part of what I would have to deal with for the rest of my life. Nearing 50 I have been to my share of doctors and not one has suggested such detailed yet simple solutions. I’m feeling hopeful for the first time in a very long time. Now I have a starting point and hope to get my quality of life back, something I have almost completely lost both physically and mentally. It’s great to know that this is being talked about more and more each day. With that said, I hope society and physicians will become aware of what Poland Syndrome is all about and unite to help with the everyday suffering both physically and mentally that we in this small community endure. And to all my fellow Poland Syndrome community, we must learn from Mary Panjoma and find ways to be heard.
    Sincerely,
    Lori

    • PIP-UK says:

      Thank you Lori for your supportive comments. We hope Poland Syndrome is researched more ans understood too!

  2. Dean Fergusson says:

    Really good video, thanks Mary… Empathised so much, I think support for prepubescent and adolescent sufferers should be highlighted… It’s a contradiction when you’re so self-conscious yet being affected by social and peer group norms at this age… Thinking you need to fit in yet feeling different can create an internal schism thus affecting self-image and confidence and I believe if you can address this it makes the physical difference you have easier to cope with and/or integrate into your psyche / personality. Thanks again, Mary… Keep sweet…and Anna…!xx

Leave a Reply

Your email address will not be published. Required fields are marked *

Copyright PIP-UK Poland Syndrome Charity 2015 | Designed by Tkey. | Based on Puretype by Elegant Themes