Poland Syndrome Support

Poland Syndrome-2

What is Poland Syndrome?

Poland Syndrome is a rare birth defect. This syndrome occurs during fetal development and the baby is born with physical defects. As a parent the first notable sign you might see are some of the child’s fingers are webbed on one hand. The other main physical sign of Poland Syndrome is an under-developed or missing chest muscle on the same side of the body as the webbed fingers. This is not something that a parent or indeed doctor may be able to see without some further investigations

What causes Poland Syndrome?

Unfortunately the answer to that is currently unknown. There are a number of theories; probably the most accepted is that during development in the womb blood flow to the arm is diminished in some way which leads to under-development.

What treatments are used for Poland Syndrome?

Poland Syndrome defects can be surgically corrected if the parents and/or child wishes to have the procedures. We highly recommend you discuss the options with your medical professional and do some research. At PIP-UK we can offer you the benefit of our experience so please contact us if you want to talk things through.

How can PIP-UK help me?

First off, we suggest you take a look at our Family Support section. Here you will find shared experiences from a variety of people who have Poland Syndrome or who have a loved who has Poland Syndrome. Next either give us a ring or send an e-mail to us. If we don’t have the answers you need we will find someone who does.

Note: PIP-UK is only sharing this information from their own experiences a medical professional should always be consulted about Poland Syndrome or any other rare conditions.

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