Poland Syndrome Support

Poland Syndrome | 10 Basic Facts

Poland Syndrome Basic Facts

Poland Syndrome is also known as Poland’s Syndrome, Poland’s Sequence, Poland’s Anomaly and Poland’s Syndactyly. It is a rare syndrome which affects a small percentage of the population. Poland Syndrome is named after the man credited for finding medical cases which linked together “Sir Alfred Poland”.

Poland Syndrome is something you are born with it is classed as a congenital birth defect. Typically a person may have one smaller hand (possibly with missing digits) and missing chest muscles on the same side. However as Poland Syndrome is a collection of symptoms rather than a disease it affects people differently. These differences are often what makes getting a diagnosis of Poland Syndrome tricky.

This slide deck contains Poland Syndrome basic facts. For those diagnosed with Poland Syndrome you might find this useful to share with medical professionals. For those recently diagnosed with Poland Syndrome, basic facts might be what you need to gain a quick overview.

Our website has more than just Poland Syndrome basic facts! We have a large number of stories from people all over the world who are parents of a child with Poland Syndrome or individuals living with Poland Syndrome themselves. Take a look around and find out some helpful hints to get round some every day obstacles. Hear stories from others living with Poland Syndrome and what it has meant to them.

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2 Responses to “Poland Syndrome | 10 Basic Facts”

  1. Melisse says:

    Hi was just wondering if any1 can help my daughter has poland syndrome and to I had a teacher/parent meeting and she’s worried about her fine motoring skills, I was wondering if it’s anything to do with poland syndrome as she writes with her right hand and it’s her side side that’s affected, her hands r fine in size etc but I’m just wondering if I’m maybe there’s a reason for it , to be honest I really don’t no the whole info about poland syndrome as when I went to hospital they basically said she’s had it then sent me on my way , any help would be great x

    • Liz says:

      Hi Melisse,

      Thank you for your message. It’s difficult to say whether or not your daughters Poland Syndrome is affecting her fine motor skills without knowing the full extent of how she is affected. Each person with P.S. is affected differently. The best way to find out is to start with by speaking to your G.P. and asking for a referral to an orthopaedic consultant for a full diagnosis of her condition and they should be able to advise you on the affect it will have on her progress. Be prepared to be persistent as often medical professionals are not aware of P.S. and can be dismissive of its affects. Don’t be put off if you are not taken seriously at first, you should ask for a second opinion. You can always ask for an appointment with another G.P. if the first one you see does not agree with you.
      Please email me at
      pip.charity@gmail.com
      for any further help or information I hope this helps you. Please keep in touch and let me know how you get on.
      I look forward to your email Melisse.
      Best Wishes
      Liz.

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