Poland Syndrome Support

PIP-UK becomes a Member of Rare Disease UK

rare disease UK header

PIP-UK  is proud to announce our membership to Rare Disease UK. We’re looking forward to a partnership that will help us with our continued work to create awareness about Poland Syndrome. We were amazed at these facts… did you know this?

  • 1 in 17 people will be affected by a rare disease at some point in their life.
  • This amounts to approximately 3.5 million people in the UK.
  • 75% of rare diseases affect children and 30% of rare disease patients will die before their 5th birthday.
  • There are over 6,000 recognised rare diseases.
  • Collectively rare diseases are not rare.

Rare Disease UK (RDUK) is the national alliance for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support.

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