Poland Syndrome Support

Get Involved

Raise Awareness of Poland Syndrome and Get Involved

  1. PIP-UK’s primary goal is to be visible and raise awareness of Poland Syndrome. You can help this by sharing our Poland Syndrome Blog posts, following us on Twitter, LinkedIn, Facebook, Tumblr, Pinterest and Google+. The more people like, comment and share the information we post the more likely it is to be seen by those who need it.
  2. Share your story to raise awareness of Poland Syndrome – every time we get contacted by a worried parent or an individual about Poland Syndrome they always say I didn’t think anybody else knew about it. Poland Syndrome is so rare it can make families and people feel isolated. The more experiences we share here the more we all learn and encourage one another.
  3. Free ways to donate – you pay nothing, just go about your everyday activities with a little change. Take a look we promise it is FREE to you. Every penny we get helps us continue to raise awareness of Poland Syndromeraise awareness of poland syndrome
  4. Run to raise awareness of Poland Syndrome – We have people running for PIP-UK to help us raise money to help the Poland Syndrome community. We can supply you with a sponsorship form and a t-shirt with our logo on it. Even our own team has been known to get out and race. Every time we do we meet someone new who hasn’t heard of Poland Syndrome is great way to raise some money for a worthy cause and spread awareness of Poland Syndrome. Contact Us
  5. Fundraise in other ways – hold a coffee morning, craft afternoon, sponsored walk or silence. Get the whole family involved and invite friends and family to join in. If you want some material and help from us we would be delighted to support you. We’ll make sure we post your event on all our sites too! Contact Us
  6. Make a donation – we don’t get any funding, everything we do is run by a team of just 3 volunteers. There’s a few different ways we use money donated to help raise awareness of Poland Syndrome and more than one way to make a donation. Find out how we spend the money donated 
  7. Share this page so others can get involved to raise awareness of Poland Syndrome
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