At PIP-UK we have a growing Poland Syndrome network. We know from our own experiences getting in touch with someone who knows what you’re going through with Poland Syndrome is really important. You can reach us by e-mail or telephone in our contact us section.
We also have our shared experiences section which has stories from all over the world from individuals who have poland syndrome and parents raising a child with poland syndrome. You can gain some insight into what to expect next for child and listen to what other people have been through, find out what it is really like to grow up with Poland Syndrome.
PIP-UK’s POLAND SYNDROME COMMUNITY : FAMILY AND FRIENDS
Our PIP-UK family grows every year with the people we meet who have Poland Syndrome and other limb differences as well as other organisations who can help you or help us become a better support for you all.