Poland Syndrome Essay by Charlotte Mercer (medical student)

Rare Disease Patient Groups: Taking Research Into Their Own Hands Rare Diseases and Research Participation Introduction Living with a rare disease can be an incredibly isolating experience, with some patients suffering in silence for many years. This problem is...

Living With Poland Syndrome – Stuart (interview)

The PIP-UK team interview Stuart about his Poland Syndrome journey and how he feels about the Poland Syndrome Community Register. Video Transcript:  Sam  0:03   Okay, welcome, everyone. We’re back in our series of talking about our global Poland Syndrome...

Poland Syndrome | Hand differences

This video is a collection of stories from parents who have kids born with a hand difference. We also hear from the children who share their experience. This is a great video for everyone to watch.