Poland Syndrome and the label of “disability” is something we have struggled with at PIP-UK to get right. Have a read of this letter what do you think?
Poland Syndrome is something a person is born with but it is not always detectable until a child grows and develops and differences become apparent
We found this posted on another website… have a read and tell us what you think. Do you agree?
Using finger braces as a therapy for Poland Syndrome was a new discovery for us. We spoke to Crystal about this who has recently started this therapy today she shares her story with us.
One of the characteristics of Poland Syndrome is that one hand is smaller than the other. The hand may webbed fingers, fused fingers or missing fingers altogether. We share a short story we found about this physical appearance.
Poland Syndrome a rare birth defect causes visual differences that are noticeable children making them easy targets to be be bullied at school. But what happens when the join the workforce?
“For every action there is an equal an opposite reaction” – Sir Isaac Newton. Newton was of course referring to physics theories but we believe today’s short story means it can apply to the human race too.
47 year old who has only just found out she has Poland Syndrome shares her story so others can learn.
We’ve reported a few times about Poland Syndrome not be diagnosed correctly. But were saddened when we heard this story from a young man.
UNLV Engineers develop a special robohand for Hailey Dawson who has Poland Syndrome this short video explains how. (Video takes a little while to start please be patient)