Poland Syndrome Support
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Poland Syndrome | Being a Trustee

Find out what it is like to be a trustee and help other people. Supporting families and individuals living with poland syndrome is the life blood of PIP-UK

Poland Syndrome Newsletter

Poland Syndrome newsletter is now available. Get your weekly edition sent to your mailbox

Poland Syndrome | 10 Basic Facts

Poland Syndrome in 10 Basic Fact Sheets

Poland Syndrome | Starting School

Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.

Poland Syndrome | We can help

A short note about some of the work we do and how we can help you on your Poland Syndrome journey

Poland Syndrome | Getting the right treatment

Sometimes you have to just keep going back to the doctor to get the right treatment. Sam shares her experience about dealing with the medical professionals to get some phsyio treatment for her son,

Back to School

It’s that time of year to start thinking about all the school uniforms, stationery, lunch boxes, shoes and all the other multitude of things you’ll need for the school year in September. Well if you are ordering on-line, you could be raising a free donation for PIP-UK and helping families affected by Poland syndrome.

Poland Syndrome | PIP payment (UK only)

Did you know it might be possible to get a Personal Independence Payment if you have Poland Syndrome? Find out more by reading this post

Coffee drinkers help us raise some funds

Be a hero with Caffe Nero ! Raise some much needed funds whilst you sip your morning or afternoon coffee

Clothes for Charity

I decided to have a good clear out of the family wardrobes to help us raise some funds in a easy way.
As a charity supporting those with Poland Syndrome and their families we’re always looking for us and our supporters to raise money simply.

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