Poland Syndrome in 10 Basic Fact Sheets
Is there a correlation between Poland Syndrome and breathing difficulties if someone has an upper respiratory infection? What is your experience?
Poland Syndrome is something a person is born with but it is not always detectable until a child grows and develops and differences become apparent
This video is a collection of stories from parents who have kids born with a hand difference. We also hear from the children who share their experience. This is a great video for everyone to watch.
We’ve reported a few times about Poland Syndrome not be diagnosed correctly. But were saddened when we heard this story from a young man.
We conducted a survey on the age at which people are diagnosed with Poland Syndrome. The results might just surprise you.
Poland syndrome is frequently not diagnosed at a young age and this can lead to providing the wrong information to youngsters especially teenagers
Find out how to translate “Poland Syndrome” into the native language of the country you’re travelling too. Might come in handy if you or a family member needs medical attention
Another family with Poland Syndrome contacted us! It’s been a great week for PIP-UK We have added to our stories and experience. Today’s personal story shows us there may be a genetic link as more than one generation in this family has Poland Syndrome.
Why is Poland Syndrome referred to as a syndrome and not a disease? Today we tell you what we have learned about that.