Poland Syndrome Support

Meeting Professor McArthur

We’re on a mission to create the first UK Poland Syndrome patient group and to enable UK medical professionals to meet with experts from across Europe to create a center of excellence in terms of knowledge and experience. This is our first step.

Poland Syndrome | Preparing Your Child for Surgery

Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier

Announcement | PIP-UK working with BAPRAS

We have an important announcement to make

Poland Syndrome | Be The Voice of Your Child

Poland Syndrome is so rare that dealing with medical professionals can be frustrating and difficult. Finding your own voice for your child can be stressful but so important.

Body Image – Teenagers

People with Poland Syndrome will at varying points in their life address the issue of body image. It’s important we start to find the right tools to help

Poland Syndrome | The Discovery

Poland Syndrome is something a person is born with but it is not always detectable until a child grows and develops and differences become apparent

PIP-UK attended a Seminar for Poland Syndrome in Rome

PIP-UK members attend our first Poland Syndrome conference in Italy … read on to find out how we got on and what we learned….

Thank you Kyocera for printer donation

    The PIP-UK team were very excited to take delivery of a brand new printer from Kyocera.  We were kindly nominated by Darren Bridgeman, with a little help from Claire Bridgeman a colleague of our Founder Sam.  The wonderful people at Kyocera gave every UK member of staff the opportunity to nominate a charity to receive a printer as part of their birthday celebrations. This printer means the world...

Happy Birthday Mario!

PIP-UK wishes Mario Padovani a very happy birthday. Mario has been featured on our site a few times. He is a truly inspirational musician who is passionate about educating the world on Poland’s Syndrome.

Rare Disease Day 2013 is here!

Today is Rare Disease Day and it is very close to the heart of PIP-UK as it champions rare condition’s like Poland’s Syndrome.  I will be marking the day by taking some Easter treats into my work place and making people aware of the significance of the day while they stop by for a treat.  If you aren’t fortunate enough to walk by my desk at work today, please can you take part by taking two...

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