Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.
Sometimes you have to just keep going back to the doctor to get the right treatment. Sam shares her experience about dealing with the medical professionals to get some phsyio treatment for her son,
It’s that time of year to start thinking about all the school uniforms, stationery, lunch boxes, shoes and all the other multitude of things you’ll need for the school year in September. Well if you are ordering on-line, you could be raising a free donation for PIP-UK and helping families affected by Poland syndrome.
Be a hero with Caffe Nero ! Raise some much needed funds whilst you sip your morning or afternoon coffee
I decided to have a good clear out of the family wardrobes to help us raise some funds in a easy way.
As a charity supporting those with Poland Syndrome and their families we’re always looking for us and our supporters to raise money simply.
Sharing experience about my son and using games consoles like playstation and Wii with Poland Syndrome.
Poland Syndrome can be a difficult diagnosis for parents and you might feel you will always have to explain to tutors about your child’s needs. But there will come a time when you don’t consider this and life will just go on….
Children start noticing differences at a young age. I share my own experience of my son’s first encounter with bullying at school, how it made me feel and what we did.
We’re on a mission to create the first UK Poland Syndrome patient group and to enable UK medical professionals to meet with experts from across Europe to create a center of excellence in terms of knowledge and experience. This is our first step.
Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier