Poland Syndrome Support

Poland Syndrome | Starting School

Is your child starting school are you worried about what to say to teachers about Poland Syndrome? Mum, Sam shares her experience.

Poland Syndrome | Getting the right treatment

Sometimes you have to just keep going back to the doctor to get the right treatment. Sam shares her experience about dealing with the medical professionals to get some phsyio treatment for her son,

Back to School

It’s that time of year to start thinking about all the school uniforms, stationery, lunch boxes, shoes and all the other multitude of things you’ll need for the school year in September. Well if you are ordering on-line, you could be raising a free donation for PIP-UK and helping families affected by Poland syndrome.

Coffee drinkers help us raise some funds

Be a hero with Caffe Nero ! Raise some much needed funds whilst you sip your morning or afternoon coffee

Clothes for Charity

I decided to have a good clear out of the family wardrobes to help us raise some funds in a easy way.
As a charity supporting those with Poland Syndrome and their families we’re always looking for us and our supporters to raise money simply.

Poland Syndrome | Using Games Consoles

Sharing experience about my son and using games consoles like playstation and Wii with Poland Syndrome.

Poland Syndrome | Swimming Lessons

Poland Syndrome can be a difficult diagnosis for parents and you might feel you will always have to explain to tutors about your child’s needs. But there will come a time when you don’t consider this and life will just go on….

Poland Syndrome | Bullying, School and Inclusion

Children start noticing differences at a young age. I share my own experience of my son’s first encounter with bullying at school, how it made me feel and what we did.

Meeting Professor McArthur

We’re on a mission to create the first UK Poland Syndrome patient group and to enable UK medical professionals to meet with experts from across Europe to create a center of excellence in terms of knowledge and experience. This is our first step.

Poland Syndrome | Preparing Your Child for Surgery

Surgery for Poland Syndrome can be quite a daunting prospect for both parent and child. We share some ideas on how to make this easier

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